Improving the Safety and Quality of Care for Children and Young People With Intellectual and Developmental Disability. The Motivated for Change Programme in a Paediatric Emergency Department Setting. A Mixed Methods Study.

Background: Children and young people with intellectual and developmental disability have long been known to suffer from inequities in accessing safe and quality health care. These challenges are most felt within the emergency department due to its busy, crowded, and overstimulating environments wit...

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Publicado en:Health Expectations Vol. 29; no. 4; pp. 1 - 10
Autores principales: Ong, Natalie, Zadeh, Sarah Ghasem, Zieba, Jerzy, Pobre, Karl, Tomsic, Gail, Milne, Jacqueline, Jani, Shefali, Silove, Natalie
Formato: pictorial research tables/charts Journal Article
Publicado: Wiley-Blackwell Aug2026
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Improving the Safety and Quality of Care for Children and Young People With Intellectual and Developmental Disability. The Motivated for Change Programme in a Paediatric Emergency Department Setting. A Mixed Methods Study.
      aug:
        au:
          Ong, Natalie
          Zadeh, Sarah Ghasem
          Zieba, Jerzy
          Pobre, Karl
          Tomsic, Gail
          Milne, Jacqueline
          Jani, Shefali
          Silove, Natalie
        affil: Sydney Medical School, Faculty of Medicine and Health, University of Sydney, Camperdown New South Wales,, Australia
      sug:
        subj:
          Education, Continuing
          Quality Improvement
          Professional Knowledge
          Professional Competence
          Confidence
          Health Personnel Education
          Intellectual Disability In Infancy and Childhood
          Developmental Disabilities
          Intellectual Disability In Adolescence
          Developmental Disabilities In Adolescence
          Emergency Care
          Patient Safety
          Quality of Health Care
          Staff Development
          Human
          Qualitative Studies
          Quantitative Studies
          Child
          Adolescence
          Behavioral Changes
          Australia
          Parents of Children with Disabilities Psychosocial Factors
          Multimethod Studies
          Attitude of Health Personnel
          Funding Source
          Child: 6-12 years
          Adolescent: 13-18 years
      ab: Background: Children and young people with intellectual and developmental disability have long been known to suffer from inequities in accessing safe and quality health care. These challenges are most felt within the emergency department due to its busy, crowded, and overstimulating environments with staff that are not trained to provide reasonably adjusted care. Aims: The study is an evaluation using qualitative and quantitative methods of a continuing education and quality improvement programme designed to increase the knowledge, skills, and confidence of healthcare staff in providing reasonable adjustments to children and young people with intellectual disability in hospitals. Methods: This study evaluated the Motivated for Change programme, which uses Behavioural change, Adult Learning, and Quality Improvement strategies to drive practice change and service improvement. A hundred and thirty‐one and 89 staff participated in a pre‐ and post‐intervention survey. Interviews were conducted with parents of children and young people with intellectual and developmental disability attending the emergency department. Observational studies were also conducted in the pre‐ and post‐intervention phase. These were transcribed, categorised, and coded with themes derived. Consensus was reached through meetings with the research team. Results: The Motivated for Change programme has demonstrated significant increases in staff knowledge, skills, and experience in providing safe and quality care for these children and young people. Evidence of change is reflected in the parent and staff interview and observational study themes. In addition, staff were further motivated to undertake quality improvement projects, develop an in‐house training programme to provide ongoing training for new staff, and make further improvements in the department. Conclusions: The Motivated for Change programme has demonstrated its efficacy in enabling changes in the practice of reasonable adjustments and the emergence of local champions for sustained efforts for ongoing improvements in safety and quality of care. Patient and Public Involvement: The development of the research question and outcome measures was informed by data from previous research publications involving parents and staff. We sought input from a parent advisory committee in the design of the study. Parents were not involved in the recruitment and conduct of the study. Results were presented to the parent advisory at the end of the study.
      pubtype: Academic Journal
      doctype:
        pictorial
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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