AI Use in Dementia Care Requires Engagement with Patient and Caregiver Perspectives.

The article focuses on the ethical challenges and importance of engaging people with dementia and their caregivers in the design and implementation of AI-enabled technologies for dementia care. It highlights that current practices often exclude these key stakeholders, leading to misaligned tools tha...

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Publicado en:American Journal of Bioethics Vol. 26; no. 9; pp. 4 - 9
Autores principales: Friend, Juliana, Black, Valerie, Chiong, Winston
Formato: editorial tables/charts Journal Article
Publicado: Taylor & Francis Ltd Sep2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Sep2026
      vid: 26
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      pub: Taylor & Francis Ltd
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        atl: AI Use in Dementia Care Requires Engagement with Patient and Caregiver Perspectives.
      aug:
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          Friend, Juliana
          Black, Valerie
          Chiong, Winston
        affil: University of California, San Francisco
      sug:
        subj:
          Dementia
          Patient Care
          Artificial Intelligence Evaluation
          Patient Participation
          Caregiver Attitudes
          Technology
          Dementia Patients
          Decision Making, Shared
          Professional-Patient Relations
          Professional-Family Relations
          Decision Making, Family
          Health Services Needs and Demand
      ab: The article focuses on the ethical challenges and importance of engaging people with dementia and their caregivers in the design and implementation of AI-enabled technologies for dementia care. It highlights that current practices often exclude these key stakeholders, leading to misaligned tools that may not meet their needs or values. The authors advocate for a user-engaged ethics approach across the AI development lifecycle—identifying needs, iterative co-design, and ongoing monitoring—to promote autonomy and address epistemic injustices arising from marginalizing dementia patients' perspectives. They also discuss interpretive difficulties in eliciting and understanding the values of people with dementia, emphasizing the need for humility and diverse communication methods to avoid inadvertently silencing their voices. Despite these challenges, sustained engagement with patients and caregivers is presented as essential for ethically responsible and effective dementia care technologies.
      pubtype: Academic Journal
      doctype:
        editorial
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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