Effect of participation in the "Each Egg a World Online" interactive artwork on bereaved parents experiences and perception of stigma after stillbirth.

After experiencing a perinatal death parents frequently report being socially isolated or stigmatized which may contribute to disenfranchized grief and prolonged grief. Here we evaluate the Each Egg a World Online participatory artwork, where parents of stillborn babies can name one of the dots in t...

Descripción completa

Detalles Bibliográficos
Publicado en:Death Studies Vol. 50; no. 9; pp. 1814 - 1826
Autores principales: van 't Klooster, Adinda R., Heazell, Alexander E. P., Smith, Debbie M.
Formato: Artículo
Publicado: Taylor & Francis Ltd 2026
Materias:
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=196565494&site=ehost-live
header:
  @attributes:
    shortDbName: ssf
    uiTerm: 196565494
    longDbName: Social Sciences Full Text (H.W. Wilson)
    uiTag: AN
  controlInfo:
    bkinfo:
    jinfo:
      jid:
        07481187
        DEA
      jtl: Death Studies
      issn: 07481187
      maglogo: N
    pubinfo:
      dt: 2026
      vid: 50
      iid: 9
      pid: 377
      pub: Taylor & Francis Ltd
    artinfo:
      ui:
        196565494
        10.1080/07481187.2025.2537977
      ppf: 1814
      ppct: 12
      formats:
      tig:
        atl: Effect of participation in the "Each Egg a World Online" interactive artwork on bereaved parents experiences and perception of stigma after stillbirth.
      aug:
        au:
          van 't Klooster, Adinda R.
          Heazell, Alexander E. P.
          Smith, Debbie M.
        affil:
          School of Digital Arts (SODA), Faculty of Arts and Humanities, Manchester Metropolitan University, Manchester, UK
          Division of Developmental Biology and Medicine, Faculty of Biology, Medicine and Health, The University of Manchester, Manchester, UK
          Division of Obstetrics, Saint Mary's Hospital, Manchester University NHS Foundation Trust, Manchester, UK
          Manchester Centre for Health Psychology, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester, UK
      su:
        Art
        Parent attitudes
        Psychological well-being
        Internet
        Perinatal death
        Bereavement
        Social networks
        Social stigma
        Research funding
        Questionnaires
        Descriptive statistics
      sug:
        subj:
          Art
          Parent attitudes
          Psychological well-being
          Internet
          Perinatal death
          Bereavement
          Social networks
          Social stigma
          Wired Telecommunications Carriers
          Internet Publishing and Broadcasting and Web Search Portals
          Other Individual and Family Services
          Research funding
          Questionnaires
          Descriptive statistics
      ab: After experiencing a perinatal death parents frequently report being socially isolated or stigmatized which may contribute to disenfranchized grief and prolonged grief. Here we evaluate the Each Egg a World Online participatory artwork, where parents of stillborn babies can name one of the dots in the artwork after their baby and write a short statement about their experience of stillbirth. Thirty-five participants completed a 51-item questionnaire to understand their experience of participating in the artwork and the impact of this on perceived stillbirth stigma and their mental health. Overall, participation in the artwork was perceived to help in the grieving process, to reduce feelings of isolation and to support personhood of their baby. The majority of people (74.3%) thought the online artwork helped to break the stigma surrounding stillbirth, however, it was recognized that to overcome societal stigma the artwork needed to reach beyond those immediately affected by perinatal bereavement. These preliminary data indicate that offering participation in the Each Egg a World Online artwork can help the grieving process for parents after perinatal death.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
    refInfo:
    copyright:
      @attributes:
        flag: N
    holdings:
      @attributes:
        islocal: N