Quality of Life in Patients with Hidradenitis Suppurativa: A Scoping Review.
Background/Objectives: Hidradenitis Suppurativa (HS) is a chronic inflammatory skin disease associated with a significant impairment in patients' quality of life (QoL). However, evidence on QoL assessment in HS remains fragmented, with heterogeneous instruments and domains reported. This scoping rev...
| Publicado en: | Nursing Reports Vol. 16; no. 8; pp. 289 - 309 |
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| Autores principales: | , , , , , , , , , , |
| Formato: | pictorial review tables/charts Journal Article |
| Publicado: |
MDPI
Aug2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=196616859&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 196616859 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 2039439X EGNT jtl: Nursing Reports issn: 2039439X maglogo: N pubinfo: dt: Aug2026 vid: 16 iid: 8 pid: 97109 pub: MDPI artinfo: ui: 196616859 196616859 196616859 10.3390/nursrep16080289 196616859 ppf: 289 ppct: 20 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Quality of Life in Patients with Hidradenitis Suppurativa: A Scoping Review. aug: au: Gambalunga, Francesca Lora, Viviana Marzo, Cristina Molinaro, Simona Pantaleo, Flavia Latina, Roberto Bolgeo, Tatiana Dellafiore, Federica Petrone, Fabrizio Panattoni, Nicolò Iacorossi, Laura affil: Professional Health Care Services Department, University Hospital "Policlinico Umberto I", 00161 Rome, Italy sug: subj: Hidradenitis Suppurativa Psychosocial Factors Quality of Life Evaluation Clinical Assessment Tools Patient-Reported Outcomes Symptom Burden Hidradenitis Suppurativa Symptoms Activities of Daily Living Body Image Social Isolation Stigma Pain Pruritus Odors Sleep Disorders Depression Anxiety Sexuality Interpersonal Relations Absenteeism Job Performance ab: Background/Objectives: Hidradenitis Suppurativa (HS) is a chronic inflammatory skin disease associated with a significant impairment in patients' quality of life (QoL). However, evidence on QoL assessment in HS remains fragmented, with heterogeneous instruments and domains reported. This scoping review aimed to map the assessment of QoL in individuals with HS, identify the instruments used, and describe the domains explored. Methods: This scoping review was conducted in accordance with the Arksey and O'Malley framework, as refined by Levac et al. and the Joanna Briggs Institute. A systematic search of six databases was performed between November 2025 and March 2026 to identify studies reporting QoL or patient-reported outcomes (PROs) in individuals with HS. Data were extracted and analyzed using a narrative synthesis approach. Results: A total of 21 studies met the inclusion criteria. HS was consistently associated with substantial QoL impairment across multiple domains, including physical, psychological, social, sexual, and occupational aspects. Symptom burden was a major determinant of reduced QoL, particularly pain, pruritus, malodor, and discharge. A wide range of instruments was used, with the Dermatology Life Quality Index (DLQI) being the most frequently applied. However, most tools did not adequately capture the multidimensional impact of HS. The use of HS-specific instruments was limited, and most studies adopted cross-sectional designs. Conclusions: QoL in HS is markedly compromised, but current assessment approaches are inconsistent and incomplete. Further research using comprehensive, disease-specific instruments and longitudinal designs is needed to better capture disease burden and support patient-centered care. pubtype: Academic Journal doctype: pictorial review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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