Purposes of AAC device use for persons with ALS as reported by caregivers.

Thirty-four informal caregivers who support 26 persons with ALS reported on AAC technology use. Each caregiver completed the Communication Device Use Checklist, a survey tool developed for this study based on Light's (1988) classification of the purposes of social interaction ( Augmentative and Alte...

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Published in:AAC: Augmentative & Alternative Communication Vol. 22; no. 3; pp. 209 - 222
Main Authors: Fried-Oken, Melanie, Fox, Lynn, Rau, Marie T., Tullman, Jill, Baker, Glory, Hindal, Mary, Wile, Nancy, Lou, Jau-Shin
Format: Article
Published: Taylor & Francis Ltd Sep2006
Subjects:
Online Access:View this record in EBSCOhost
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        atl: Purposes of AAC device use for persons with ALS as reported by caregivers.
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          Fried-Oken, Melanie
          Fox, Lynn
          Rau, Marie T.
          Tullman, Jill
          Baker, Glory
          Hindal, Mary
          Wile, Nancy
          Lou, Jau-Shin
        affil:
          Oregon Health & Science University, Portland, Oregon, USA
          Portland State University, Portland, Oregon, USA
          Portland VA Medical Center, Portland, Oregon, USA
          University of Colorado Health Sciences Center, Denver, Colorado, USA
      su:
        Caregivers
        Patients
        Amyotrophic lateral sclerosis
        Communication devices for people with disabilities
        Social interaction
        Information retrieval
        Interpersonal relations
        Conversation
      sug:
        subj:
          Caregivers
          Patients
          Amyotrophic lateral sclerosis
          Communication devices for people with disabilities
          Social interaction
          Information retrieval
          Interpersonal relations
          Conversation
      keyword:
        Augmentative and alternative communication
        Communication purposes
      ab: Thirty-four informal caregivers who support 26 persons with ALS reported on AAC technology use. Each caregiver completed the Communication Device Use Checklist, a survey tool developed for this study based on Light's (1988) classification of the purposes of social interaction ( Augmentative and Alternative Communication , 4 , 66 – 82). The checklist includes 17 purposes of communication and asks participants to judge importance, mode, and frequency of use for each purpose. Results show that the three communication purposes used most frequently and valued as important by caregivers involve regulating the behavior of others for basic needs and wants (getting needs met; giving instructions or directions to others; and clarifying needs). Consistent reports of use and frequency for the purposes of staying connected (social closeness) and discussing important issues (information transfer) indicate that AAC technology can assist the dyad in maintaining previous relationships. The face-to-face spontaneous conversation mode is used most frequently, despite the slow rate of production, the lack of permanence, and the demands on conversational partners during message generation. Clinical and research implications are discussed.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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