Vocational Guidance and Employment of Persons with a Diagnosis of Prader-Willi Syndrome.

Prader-Willi syndrome is one of the more frequently recognized genetic conditions, the features of which arise from insufficient functioning of the hypothalamus. In adults, Prader-Willi syndrome is characterized by insatiable appetite, obsessive behavior, low metabolic rate, and emotional lability....

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Detalles Bibliográficos
Publicado en:Journal of Rehabilitation Vol. 69; no. 1; pp. 15 - 22
Autores principales: Wadsworth, John S., McBrien, Dianne M., Harper, Dennis C.
Formato: Artículo
Publicado: National Rehabilitation Association January/February/March 2003
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Acceso en línea:Ver este registro en EBSCOhost
Descripción
Sumario:Prader-Willi syndrome is one of the more frequently recognized genetic conditions, the features of which arise from insufficient functioning of the hypothalamus. In adults, Prader-Willi syndrome is characterized by insatiable appetite, obsessive behavior, low metabolic rate, and emotional lability. Persons with Prader-Willi syndrome present unique challenges for rehabilitation professionals as the supervision necessary to prevent premature death due to overeating may be in conflict with the philosophical and ethical standards that promote consumer independence and choice. This paper provides information to assist rehabilitation professionals in designing vocational programs that maximize consumer choice while offering the support needed to prevent harm and maintain a quality lifestyle. Reprinted by permission of the publisher.