Communication and Miscommunication in Informed Consent to Research.
Biomedical ethics require that research subjects be aware that the drugs they take or procedures they undergo are designed to fulfill the conditions of the experiment and not to benefit a subject's health. This apparently straightfoward distinction between research and treatment is a source of much...
| Publicado en: | Medical Anthropology Quarterly Vol. 18; no. 4; pp. 429 - 447 |
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| Formato: | Artículo |
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Wiley-Blackwell
December 2004
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=510428514&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 510428514 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 07455194 GFS jtl: Medical Anthropology Quarterly issn: 07455194 maglogo: N pubinfo: dt: December 2004 vid: 18 iid: 4 pid: 480 pub: Wiley-Blackwell artinfo: ui: 510428514 10.1525/maq.2004.18.4.429 ppf: 429 ppct: 18 formats: fmt: – @attributes: type: T – @attributes: type: P size: 1.1MB tig: atl: Communication and Miscommunication in Informed Consent to Research. aug: au: Sankar, Pamela su: Informed consent (Medical law) Medical communication Medical research ethics sug: subj: Informed consent (Medical law) Medical communication Medical research ethics ab: Biomedical ethics require that research subjects be aware that the drugs they take or procedures they undergo are designed to fulfill the conditions of the experiment and not to benefit a subject's health. This apparently straightfoward distinction between research and treatment is a source of much controversy and misunderstanding. Ethicists have labeled this problem the “therapeutic misconception.” This misconception and, more broadly, informed consent have been studied extensively. Nonetheless, the therapeutic misconception persists among research subjects. This paper argues that one factor overlooked in the persistence of the therapeutic misconception is the effect of the theoretical paradigm that guides the practice and analysis of informed consent. The paradigm poses an idealized model of communication that ignores social context. This paper examines informed consent practices associated with a cancer research trial to demonstrate an alternative approach to studying informed consent to research. Through analysis of informed consent session transcripts, it demonstrates the importance of taking account of not only what is said, but how and by whom it is said. [genetics, biomedical research, informed consent, biomedical language] Reprinted by permission of the publisher. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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