Pre-counseling Education for Low Literacy Women at Risk of Hereditary Breast and Ovarian Cancer (HBOC): Patient Experiences Using the Cancer Risk Education Intervention Tool (CREdIT).
The Cancer Risk Education Intervention Tool ( CREdIT) is a computer-based (non-interactive) slide presentation designed to educate low-literacy, and ethnically and racially diverse public hospital patients at risk of Hereditary Breast and Ovarian Cancer (HBOC) about genetics. To qualitatively evalua...
| Publicado en: | Journal of Genetic Counseling Vol. 19; no. 5; pp. 447 - 463 |
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| Autores principales: | , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Oct2010
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=53873767&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 53873767 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10597700 41A jtl: Journal of Genetic Counseling issn: 10597700 maglogo: N pubinfo: dt: Oct2010 vid: 19 iid: 5 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 53873767 105103421 105103421 10.1007/s10897-010-9303-3 53873767 ppf: 447 ppct: 16 formats: fmt: @attributes: type: P tig: atl: Pre-counseling Education for Low Literacy Women at Risk of Hereditary Breast and Ovarian Cancer (HBOC): Patient Experiences Using the Cancer Risk Education Intervention Tool (CREdIT). aug: au: Joseph, Galen Beattie, Mary Lee, Robin Braithwaite, Dejana Wilcox, Carolina Metrikin, Maya Lamvik, Kate Luce, Judith affil: University of California, San Francisco, and San Francisco General Hospital Cancer Risk Program, San Francisco USA sug: subj: Patient Education Psychosocial Factors Genetics Education Special Populations Health Knowledge Patient Attitudes Genetic Counseling Patient Education Methods Breast Neoplasms Familial and Genetic Breast Neoplasms Risk Factors Ovarian Neoplasms Familial and Genetic Ovarian Neoplasms Risk Factors Qualitative Studies Pilot Studies Psychotherapist Attitudes Semi-Structured Interview Questionnaires Human Female Adult Middle Age Data Analysis Software Descriptive Statistics Genetic Screening Family History Language Processing Cultural Values Computer-Assisted Instruction Slides Narratives Literacy Cultural Diversity Funding Source Adult: 19-44 years Middle Aged: 45-64 years Female ab: The Cancer Risk Education Intervention Tool ( CREdIT) is a computer-based (non-interactive) slide presentation designed to educate low-literacy, and ethnically and racially diverse public hospital patients at risk of Hereditary Breast and Ovarian Cancer (HBOC) about genetics. To qualitatively evaluate participants' experience with and perceptions of a genetic education program as an adjunct to genetic counseling, we conducted direct observations of the intervention, semi-structured in person interviews with 11 women who viewed CREdIT, and post-counseling questionnaires with the two participating genetic counselors. Five themes emerged from the analysis of interviews: (1) genetic counseling and testing for breast/ovarian cancer was a new concept; (2) CREdIT's story format was particularly appealing; (3) changes in participants' perceived risk for breast cancer varied; (4) some misunderstandings about individual risk and heredity persisted after CREdIT and counseling; (5) the context for viewing CREdIT shaped responses to the presentation. Observations demonstrated ways to make the information provided in CREdIT and by genetic counselors more consistent. In a post-session counselor questionnaire, counselors' rating of the patient's preparedness before the session was significantly higher for patients who viewed CREdIT prior to their appointments than for other patients. This novel educational tool fills a gap in HBOC education by tailoring information to women of lower literacy and diverse ethnic/racial backgrounds. The tool was well received by interview participants and counselors alike. Further study is needed to examine the varied effects of CREdIT on risk perception. In addition, the implementation of CREdIT in diverse clinical settings and the cultural adaptation of CREdIT to specific populations reflect important areas for future work. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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