Culture, consent, costs and care homes: Enabling older people with dementia to participate in research.
Objectives: To describe factors that support and inhibit recruitment and participation of people with dementia living in care homes. Method: This article focuses on the methods used to recruit people with dementia to a longitudinal study that employed a mixed-method design to track events and care t...
| Publicado en: | Aging & Mental Health Vol. 15; no. 4; pp. 475 - 482 |
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| Autores principales: | , , , , , , |
| Formato: | Artículo |
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Taylor & Francis Ltd
May2011
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=60040923&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 60040923 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 13607863 57E jtl: Aging & Mental Health issn: 13607863 maglogo: N pubinfo: dt: May2011 vid: 15 iid: 4 pid: 377 pub: Taylor & Francis Ltd artinfo: ui: 60040923 10.1080/13607863.2010.543659 ppf: 475 ppct: 7 formats: tig: atl: Culture, consent, costs and care homes: Enabling older people with dementia to participate in research. aug: au: Goodman, Claire Baron, Natasha L. Machen, Ina Stevenson, Elizabeth Evans, Catherine Davies, Sue L. Iliffe, Steve affil: Centre for Research in Primary and Community Care, University of Hertfordshire, Hatfield, UK Department of Palliative Care, Policy and Rehabilitation Cicely Saunders Institute, King's College London, London, UK Department of Primary Care and Population Sciences, University College London, London, UK su: Adult care facilities Medical care Residential care Dementia patients Neurobehavioral disorders Long-term care facilities -- Admission Brain diseases sug: subj: Adult care facilities Medical care Continuing Care Retirement Communities Other Residential Care Facilities Residential care Dementia patients Neurobehavioral disorders Long-term care facilities -- Admission Brain diseases keyword: care homes dementia recruitment care homes dementia recruitment ab: Objectives: To describe factors that support and inhibit recruitment and participation of people with dementia living in care homes. Method: This article focuses on the methods used to recruit people with dementia to a longitudinal study that employed a mixed-method design to track events and care that older people with dementia experienced over two years in six care homes. A staged approach to recruitment was adopted involving separate meetings with staff, residents and relatives. Individual consent was secured with residents with dementia who could consent in the moment and for those without capacity, through mail and follow-up telephone contact with consultees. Data were collected on the frequency of meetings, issues raised by staff, consultees and people with dementia as well as the overall time taken to complete recruitment. Results: Over five months, 133 older people with dementia were recruited (62% of sampling frame). The recruitment process was supported or hindered by the number of individuals and organisations that needed to be consulted, the care home culture, staff's understanding of how people with dementia can be involved in research, and how they interpreted their role as mediators, protectors and gatekeepers. Conclusions: Care homes are isolated communities of care. To achieve the research objectives, researchers in the initial stages need to consider the philosophical underpinnings of individual care homes, and the politics of hierarchy both within the care home and between it, and health professionals. There is a need to develop credible infrastructures of support that enable people with dementia to participate in research. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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