Being heard: aiding public participation in decision making.

It is increasingly important that people have input into the services they receive. However, research suggests that service users and their carers need support to work effectively with professionals and achieve change. Nineteen carers who represent the interests of service users with autism spectrum...

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Publicado en:Learning Disability Practice Vol. 14; no. 8; pp. 26 - 31
Autores principales: Given, Joanne, Slevin, Eamonn
Formato: pictorial research Journal Article
Publicado: Royal College of Nursing of the United Kingdom (The) Oct2011
Acceso en línea:Ver este registro en EBSCOhost
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      pub: Royal College of Nursing of the United Kingdom (The)
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          Given, Joanne
          Slevin, Eamonn
        affil: PhD student, University of Ulster, Coleraine
      sug:
        subj:
          Consumer Participation
          Decision Making
          Health Services Needs and Demand
          Caregivers Psychosocial Factors
          Autism Spectrum Disorder Psychosocial Factors
          Human
          Qualitative Studies
          Focus Groups
          Interviews
          Audiorecording
          Purposive Sample
          Male
          Female
          Family Role
          Professional-Family Relations
          Communication
          Male
          Female
      ab: It is increasingly important that people have input into the services they receive. However, research suggests that service users and their carers need support to work effectively with professionals and achieve change. Nineteen carers who represent the interests of service users with autism spectrum disorders were interviewed about services. Parents and carers were satisfied that their voices were being heard but highlighted training needs and changes that could help their contribution to service design. These included training in communication skills, written and verbal; background knowledge on the health and social care system; and information about how decisions, particularly financial ones, are made.
      pubtype: Academic Journal
      doctype:
        pictorial
        research
        Journal Article
      ougenre: Article
    language: English
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