The Disappearing Subject: Exclusion of People with Cognitive Impairment and Dementia from Geriatrics Research.

Objectives To evaluate exclusion of persons with cognitive impairment from research in geriatrics by determining its frequency, method, and rationale and treatment in the resulting publications. Design All original research articles published in 2008 and 2009 in the Journal of the American Geriatric...

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Publicado en:Journal of the American Geriatrics Society Vol. 60; no. 3; pp. 413 - 420
Autores principales: Taylor, Janelle S., DeMers, Shaune M., Vig, Elizabeth K., Borson, Soo
Formato: Artículo
Publicado: Wiley-Blackwell Mar2012
Materias:
Acceso en línea:Ver este registro en EBSCOhost
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        10.1111/j.1532-5415.2011.03847.x
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        atl: The Disappearing Subject: Exclusion of People with Cognitive Impairment and Dementia from Geriatrics Research.
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          Taylor, Janelle S.
          DeMers, Shaune M.
          Vig, Elizabeth K.
          Borson, Soo
        affil:
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          jgs3847-aff-0002
          jgs3847-aff-0003
          jgs3847-aff-0004
      su:
        Geriatrics
        Human research subjects
        Old age
        Cognition disorders
        Dementia
        Research methodology
        Systematic reviews
        Patient selection
        Descriptive statistics
      sug:
        subj:
          Geriatrics
          Human research subjects
          Old age
          Cognition disorders
          Dementia
          Research methodology
          Systematic reviews
          Patient selection
          Descriptive statistics
      ab: Objectives To evaluate exclusion of persons with cognitive impairment from research in geriatrics by determining its frequency, method, and rationale and treatment in the resulting publications. Design All original research articles published in 2008 and 2009 in the Journal of the American Geriatrics Society (n = 434) were reviewed using a structured data collection tool. Setting The Journal of the American Geriatrics Society. Participants There were no participants in this study. Measurements Data captured included recruitment method, explicit criterion for exclusion of persons with cognitive impairment, justification of exclusion criterion, reason given for exclusion, percentage of individuals excluded, and mention of exclusion as a possible limitation. Results Of 434 articles examined, 16% used recruitment methods likely to reduce participation by persons with cognitive impairment. At least 29% of studies (n = 127) employed explicit exclusion criteria. Half used the Folstein Mini-Mental State Examination ( MMSE), with variable cut points (10, 12, 17, 18, 23, 26), and 19% excluded individuals for 'having dementia' without specifying how this was determined. Few (6%) provided any justification for exclusion criteria used, only 43% gave any reason for exclusion, and only 14% discussed exclusion as a possible limitation. Conclusion Persons with cognitive impairment are frequently excluded from research, often without rationale or mention of exclusion as a limitation or any discussion of its potential effect on the evidence base in geriatrics. When necessary, exclusion should be done thoughtfully and with awareness that this may reduce the clinical utility of study findings.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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