Genotype, phenotype, and clinical course in five patients with PAPA syndrome (pyogenic sterile arthritis, pyoderma gangrenosum, and acne).

Objective To describe the genotypes, phenotypes, immunophenotypes, and treatments of PAPA syndrome (pyogenic sterile arthritis, pyoderma gangrenosum, and acne), a rare autoinflammatory disease, in 5 patients. Methods Clinical information was gathered from medical records and through interviews with...

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Publicado en:Arthritis & Rheumatism Vol. 64; no. 6; pp. 2022 - 2028
Autores principales: Demidowich, Andrew P., Freeman, Alexandra F., Kuhns, Douglas B., Aksentijevich, Ivona, Gallin, John I., Turner, Maria L., Kastner, Daniel L., Holland, Steven M.
Formato: pictorial research tables/charts Journal Article
Publicado: Wiley-Blackwell Jun2012
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jun2012
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      pub: Wiley-Blackwell
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        10.1002/art.34332
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        atl: Genotype, phenotype, and clinical course in five patients with PAPA syndrome (pyogenic sterile arthritis, pyoderma gangrenosum, and acne).
      aug:
        au:
          Demidowich, Andrew P.
          Freeman, Alexandra F.
          Kuhns, Douglas B.
          Aksentijevich, Ivona
          Gallin, John I.
          Turner, Maria L.
          Kastner, Daniel L.
          Holland, Steven M.
        affil: National Institute of Allergy and Infectious Diseases, NIH, Bethesda, Maryland
      sug:
        subj:
          Syndrome Familial and Genetic
          Pyoderma Gangrenosum
          Arthritis
          Acne Vulgaris
          Human
          Genotype
          Phenotype
          Case Management
          Medical Records
          Interviews
          Mutation
          Case Control Studies
          Case Studies
          Family History
          Pedigree
          Cytokines
          T-Tests
          Equipment and Supplies
          Analysis of Variance
      ab: Objective To describe the genotypes, phenotypes, immunophenotypes, and treatments of PAPA syndrome (pyogenic sterile arthritis, pyoderma gangrenosum, and acne), a rare autoinflammatory disease, in 5 patients. Methods Clinical information was gathered from medical records and through interviews with 5 patients from 4 kindreds. PSTPIP1 ( CD2BP1) exon 10 and exon 11 sequencing was performed in each patient. Neutrophil granule content and cytokine levels were determined in plasma and stimulated peripheral blood mononuclear cells (PBMCs) from patients and controls. Results We identified 2 previously described PAPA syndrome-associated PSTPIP1 mutations, A230T and E250Q, and a novel change, E250K. Disease penetrance was incomplete, with variable expressivity. The cutaneous manifestations included pathergy, cystic acne, and pyoderma gangrenosum. Interleukin-1β (IL-1β) and circulating neutrophil granule enzyme levels were markedly elevated in patients compared to those in controls. PBMC stimulation studies demonstrated impaired production of IL-10 and enhanced production of granulocyte-macrophage colony-stimulating factor. Good resolution of pyoderma gangrenosum was achieved in 3 patients with tumor necrosis factor α (TNFα) blockade treatment. Conclusion This analysis of 5 patients demonstrates that mutations in PSTPIP1 are incompletely penetrant and variably expressed in the PAPA syndrome. Neutrophil granule proteins are markedly elevated ex vivo and in the plasma, and elevated levels might be compatible with a diagnosis of PAPA syndrome. TNFα blockade appears to be effective in treating the cutaneous manifestations of PAPA syndrome.
      pubtype: Academic Journal
      doctype:
        pictorial
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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