Expanding the Frame of "Voluntariness" in Informed Consent: Structural Coercion and the Power of Social and Economic Context.
This paper introduces the term "structural coercion" to underscore the ways in which broader social, economic, and political contexts act upon individuals to compel them to enroll as subjects in clinical research. The paper challenges the adequacy of the concepts of "coercion" and "undue influence"...
| Publicado en: | Kennedy Institute of Ethics Journal Vol. 23; no. 4; pp. 355 - 380 |
|---|---|
| Autor principal: | |
| Formato: | Artículo |
| Publicado: |
Johns Hopkins University Press
Dec2014
|
| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=93478792&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 93478792 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 10546863 OA1 jtl: Kennedy Institute of Ethics Journal issn: 10546863 maglogo: N pubinfo: dt: Dec2014 vid: 23 iid: 4 pid: 226 pub: Johns Hopkins University Press artinfo: ui: 93478792 10.1353/ken.2013.0018 ppf: 355 ppct: 25 formats: tig: atl: Expanding the Frame of "Voluntariness" in Informed Consent: Structural Coercion and the Power of Social and Economic Context. aug: au: Fisher, Jill A. su: Duress (Law) Consent (Law) Human research subjects Research ethics Undue influence sug: subj: Duress (Law) Consent (Law) Human research subjects Research ethics Undue influence ab: This paper introduces the term "structural coercion" to underscore the ways in which broader social, economic, and political contexts act upon individuals to compel them to enroll as subjects in clinical research. The paper challenges the adequacy of the concepts of "coercion" and "undue influence" in determining when research participation is voluntary. Acknowledging structural coercion shifts the frame of ethical deliberation away from specific individuals and specific studies to see important patterns in research participation by salient demographic characteristics. The effects of structural coercion manifest themselves in particular research settings, but unlike the conventional form of coercion, it is not rooted in the researcher-participant relationship or linked to particular study protocols. By extracting voluntariness from entrenched conceptions of the researcher-participant dyad, this paper proposes approaches to minimize the effects of structural coercion while creating new ethical imaginaries for review boards and researchers alike. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
|---|