An Exploration of Parents' Experiences and Empowerment in the Care for Preterm Born Children.
Because of improved survival rates and medical prospects, the emphasis in care for preterm infants has shifted in recent years to a focus on support for the wellbeing of children and their families. For the healthcare professionals the parents of these children are the main partners for improving th...
| Publicado en: | Journal of Child & Family Studies Vol. 23; no. 6; pp. 1081 - 1090 |
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| Autores principales: | , , , |
| Formato: | Artículo |
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Springer Nature
Aug2014
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=96927002&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 96927002 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 10621024 JFM jtl: Journal of Child & Family Studies issn: 10621024 maglogo: N pubinfo: dt: Aug2014 vid: 23 iid: 6 pid: 237 pub: Springer Nature artinfo: ui: 96927002 10.1007/s10826-013-9765-7 ppf: 1081 ppct: 9 formats: fmt: @attributes: type: P size: 192KB tig: atl: An Exploration of Parents' Experiences and Empowerment in the Care for Preterm Born Children. aug: au: Pal, Sylvia Alpay, Laurence Steenbrugge, Gert Detmar, Symone affil: TNO, Child Health, 2301 CE Leiden The Netherlands TNO, Life Style, Leiden The Netherlands Dutch Association of Parents of Newborn Infants (VOC), Leidschendam The Netherlands su: Communication Focus groups Premature infants Interviewing Parents Self-efficacy Patient aftercare Neonatal intensive care Neonatal intensive care units sug: subj: Communication Focus groups Premature infants Interviewing Parents Self-efficacy Home Health Care Services All Other Outpatient Care Centers Patient aftercare Neonatal intensive care Neonatal intensive care units keyword: Aftercare Newborn infants Parent empowerment Parents' experiences Patient empowerment Preterm born infants Aftercare Newborn infants Parent empowerment Parents' experiences Patient empowerment Preterm born infants ab: Because of improved survival rates and medical prospects, the emphasis in care for preterm infants has shifted in recent years to a focus on support for the wellbeing of children and their families. For the healthcare professionals the parents of these children are the main partners for improving the care of their children. In this context, referring to 'patient empowerment' implies not only the infant but also the parents, in other words 'parent empowerment'. We aimed to explore parents' experiences with hospital and aftercare for their preterm children, and the implications for parent empowerment, by organizing face-to-face (n = 4 and n = 7) and online (n = 14) focus group interviews with parents of preterm children. These focus group interviews showed that these parents indicated a lack of support and recognition of parental worries in the care for their infant during two important periods: (1) the transfer to another hospital and (2) after discharge home. These group interviews showed that parents greatly value initiatives that support and empower them in their role as parents and that strengthens their involvement in the care for their children. Requirements for enhancing parent empowerment are proposed. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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