The experiences of mothers of young adults with an intellectual disability transitioning from secondary school to adult life.
Background The transition from school to adulthood for young adults with an intellectual disability involves movement from a generally secure and supported school environment to an emerging adult life that may be characterised by a wide variation in adoption of adult roles related to employment, ind...
| Publicado en: | Journal of Intellectual & Developmental Disability Vol. 38; no. 2; pp. 149 - 163 |
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| Autores principales: | , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Jun2013
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=104288459&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 104288459 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13668250 DDI jtl: Journal of Intellectual & Developmental Disability issn: 13668250 maglogo: Y pubinfo: dt: Jun2013 vid: 38 iid: 2 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 104288459 87584826 10.3109/13668250.2013.789099 NLM23672660 104288459 ppf: 149 ppct: 14 formats: fmt: @attributes: type: P tig: atl: The experiences of mothers of young adults with an intellectual disability transitioning from secondary school to adult life. aug: au: Dyke, Paula Bourke, Jenny Llewellyn, Gwynnyth Leonard, Helen affil: Telethon Institute for Child Health Research, Centre for Child Health Research, University of Western Australia, Perth, WA, Australia sug: subj: Persons with Intellectual Disabilities Adolescent Development Maternal Attitudes Human Female Down Syndrome Rett Syndrome Community Living Employment Friendship Semi-Structured Interview International Classification of Functioning, Disability, and Health Thematic Analysis Purposive Sample Young Adult Adult Random Sample Data Analysis Software Australia Male Audiorecording Day Care Quality of Life Content Analysis Conceptual Framework Funding Source Adult: 19-44 years Female Male ab: Background The transition from school to adulthood for young adults with an intellectual disability involves movement from a generally secure and supported school environment to an emerging adult life that may be characterised by a wide variation in adoption of adult roles related to employment, independent living, friendships, and day activities. Method In this study, we investigated the perspectives of 18 mothers of young adults with either Down syndrome or Rett syndrome through qualitative semistructured interviews. The International Classification of Functioning, Disability and Health (ICF) framework was used as a conceptual basis. Results Themes that emerged included adult roles assumed during the day, accommodation, quality of life, living a 'good' life, and family impact. Conclusions In contrast with Rett syndrome, mothers of young adults with Down syndrome described more difficult pathways to attaining stability in adult roles. Environmental facilitators and barriers emerged in the area of support, relationships, services, systems, and policies. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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