Informed consent in Mexican American family cancer caregivers: strategies to promote diverse community research.
Racial and ethnic populations, such as Mexican Americans (MA), experience poor access to care, limited English proficiency (LEP) and low literacy issues which influence timely receipt of quality health care and increased societal costs of cancer care. Greater research focus must occur to implement c...
| Publicado en: | Southern Online Journal of Nursing Research Vol. 10; no. 1; pp. 15p - 16 |
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| Autores principales: | , |
| Formato: | Journal Article |
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Southern Nursing Research Society
Jan2010
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=105212437&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 105212437 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 15380696 YZW jtl: Southern Online Journal of Nursing Research issn: 15380696 maglogo: N pubinfo: dt: Jan2010 vid: 10 iid: 1 pid: 20556 pub: Southern Nursing Research Society place: Tuscaloosa, Alabama artinfo: ui: 105212437 2010668908 105212437 ppf: 15p ppct: 1 formats: fmt: @attributes: type: T tig: atl: Informed consent in Mexican American family cancer caregivers: strategies to promote diverse community research. aug: au: Wells HN Cagle CS affil: Texas Christian University sug: subj: Consent (Research) Health Services Accessibility Hispanic Americans United States Research Subject Recruitment Cancer Patients Caregivers Cultural Sensitivity Educational Status Ethics Theory Female Information Needs Literacy Mexico National Institutes of Health (U.S.) Quality of Life United States Female ab: Racial and ethnic populations, such as Mexican Americans (MA), experience poor access to care, limited English proficiency (LEP) and low literacy issues which influence timely receipt of quality health care and increased societal costs of cancer care. Greater research focus must occur to implement culturally sensitive interventions to help meet these groups' needs and rights for care and address health care disparities that negatively influence overall community health. Receipt of informed consent provides the ethical and legal foundation for participant involvement in research to identify culturally sensitive interventions. However, receipt and maintenance of such consent presents challenges to research teams when the participants possess LEP, low literacy levels, and hold cultural values influencing research participation. The research team examined the cancer caregiving experience among MA females and engaged in various strategies to respond to these challenges. This article describes those challenges and strategies to provide informed consent to meet both legal and ethical standards for research with a vulnerable population group. Findings may guide other researchers who value an informed consent process based on honesty, trust, and respect for ethnic group representatives that inform needed research with ethnically diverse communities. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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