'A voyage of grief and beauty': supporting a dying family member with an intellectual disability.

This article reports on a small research project designed to reveal what it is like to support a dying family member with an intellectual disability in a community setting. Five open-ended interviews were conducted with individuals who had experienced this phenomenon. Three thematic elements which l...

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Detalles Bibliográficos
Publicado en:International Journal of Palliative Nursing Vol. 14; no. 7; pp. 342 - 350
Autores principales: Marlow S, Martin M
Formato: research tables/charts Journal Article
Publicado: Mark Allen Holdings Limited Jul2008
Acceso en línea:Ver este registro en EBSCOhost
Descripción
Sumario:This article reports on a small research project designed to reveal what it is like to support a dying family member with an intellectual disability in a community setting. Five open-ended interviews were conducted with individuals who had experienced this phenomenon. Three thematic elements which lay within the experience of being a family support person were elucidated through hermeneutic phenomenological analysis of interview audio-recordings, verbatim transcripts and field notes. Collectively, these themes (Interlocked Companionship, Search for New Balance and Permeable Interaction) created a metaphorical understanding that participants had navigated 'a voyage of grief and beauty'. Rhetorical consideration of the research findings generated recommendations for tertiary, palliative care and intellectual disability support services. These are presented along with suggestions for future research.