'A voyage of grief and beauty': supporting a dying family member with an intellectual disability.
This article reports on a small research project designed to reveal what it is like to support a dying family member with an intellectual disability in a community setting. Five open-ended interviews were conducted with individuals who had experienced this phenomenon. Three thematic elements which l...
| Publicado en: | International Journal of Palliative Nursing Vol. 14; no. 7; pp. 342 - 350 |
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| Autores principales: | , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Mark Allen Holdings Limited
Jul2008
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=105811112&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 105811112 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13576321 GHF jtl: International Journal of Palliative Nursing issn: 13576321 maglogo: N pubinfo: dt: Jul2008 vid: 14 iid: 7 pid: 11383 pub: Mark Allen Holdings Limited artinfo: ui: 105811112 105811112 2009990275 10.12968/ijpn.2008.14.7.30620 NLM18959283 105811112 ppf: 342 ppct: 8 formats: fmt: @attributes: type: P tig: atl: 'A voyage of grief and beauty': supporting a dying family member with an intellectual disability. aug: au: Marlow S Martin M affil: Programme Coordinator, Certificate in Nursing, Whitireia Community Polytechnic, New Zealand; sue.marlow@whitireia.ac.nz sug: subj: Family Relations Grief Intellectual Disability Psychosocial Factors Audiorecording Coping Empathy Field Notes Interviews Phenomenological Research Snowball Sample Support, Psychosocial Thematic Analysis Human ab: This article reports on a small research project designed to reveal what it is like to support a dying family member with an intellectual disability in a community setting. Five open-ended interviews were conducted with individuals who had experienced this phenomenon. Three thematic elements which lay within the experience of being a family support person were elucidated through hermeneutic phenomenological analysis of interview audio-recordings, verbatim transcripts and field notes. Collectively, these themes (Interlocked Companionship, Search for New Balance and Permeable Interaction) created a metaphorical understanding that participants had navigated 'a voyage of grief and beauty'. Rhetorical consideration of the research findings generated recommendations for tertiary, palliative care and intellectual disability support services. These are presented along with suggestions for future research. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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