An overview of the impact of rare disease characteristics on research methodology.
Background: About 30 million individuals in the United States are living with a rare disease, which by definition have a prevalence of 200,000 or fewer cases in the United States ([National Organization for Rare Disorders], [About NORD], [2016]). Disease heterogeneity and geographic dispersion add t...
| Publicado en: | Orphanet Journal of Rare Diseases Vol. 13; pp. 1 - 13 |
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| Autores principales: | , , |
| Formato: | research Journal Article |
| Publicado: |
BioMed Central
1/19/2018
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| Acceso en línea: | Ver este registro en EBSCOhost |