Health Perception and Behaviors in Adults With Bronchiectasis.
BACKGROUND: Bronchiectasis is a chronic debilitating suppurative disease that significantly impacts quality of life. Clinical outcomes like exacerbations, are usually physician centered; however, the patients' experience, health-related behaviors, and expectations have frequently been neglected. In...
| Publicado en: | Respiratory Care Vol. 64; no. 4; pp. 462 - 473 |
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| Autores principales: | , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Mary Ann Liebert, Inc.
Apr2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=135791621&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 135791621 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 00201324 4GG jtl: Respiratory Care issn: 00201324 maglogo: N pubinfo: dt: Apr2019 vid: 64 iid: 4 pid: 1365 pub: Mary Ann Liebert, Inc. place: New Rochelle, New York artinfo: ui: 135791621 135791621 135791621 10.4187/respcare.06394 135791621 ppf: 462 ppct: 11 formats: fmt: @attributes: type: P tig: atl: Health Perception and Behaviors in Adults With Bronchiectasis. aug: au: Wei-jie Guan Jing-jing Yuan Hui-min Li Yan Huang Chun-lan Chen Yong-hua Gao Rong-chang Chen Nan-shan Zhong affil: State Key Laboratory of Respiratory Disease, National Clinical Research Center for Respiratory Disease, Guangzhou Institute of Respiratory Health, First Affiliated Hospital of Guangzhou Medical University, Guangzhou Medical University, Guangzhou, Guangdong, China sug: subj: Bronchiectasis Psychosocial Factors Attitude to Health Health Behavior Human Funding Source China Male Female Adult Middle Age Interviews Audiorecording Health Services Accessibility Physician-Patient Relations Communication Medication Compliance Quality of Life Interpersonal Relations Convenience Sample Severity of Illness Indices Patient Attitudes Bronchiectasis Symptoms Health Care Costs Self Assessment Support, Psychosocial Patient-Family Relations Support Groups Fertility Adult: 19-44 years Middle Aged: 45-64 years Male Female ab: BACKGROUND: Bronchiectasis is a chronic debilitating suppurative disease that significantly impacts quality of life. Clinical outcomes like exacerbations, are usually physician centered; however, the patients' experience, health-related behaviors, and expectations have frequently been neglected. In addition, patients' health perceptions may be influenced by their culture. OBJECTIVE: To determine the health perception and behavior in adults with bronchiectasis. METHODS: We performed semi-directive interviews, which were audiotaped, with 60 adults with bronchiectasis between April 2016 and December 2016. Our interview focused on issues related to symptom perception, access to health-care resources and patient-physician communication, medication adherence, outcomes and expectations, quality of life, and social relationships. RESULTS: The subjects with bronchiectasis developed varying patterns of symptom perception (ranging from highly distressing to barely disturbing) and had conflicting opinions on whether and when they should seek health-care services (ranging from active consultations to being totally passive or resistant to seek health care). We observed certain discrepancies between symptom perception and health-related behaviors. Overall, medication adherence was suboptimal, but the subjects were willing to participate in clinical trials and receive complementary alternative medications despite concerns regarding adverse effects of prolonged treatment. There were concerns about the adverse effects of bronchiectasis on fertility and infectiousness to others, although most subjects disregarded these issues. CONCLUSIONS: The diverse symptom perception and health-related behaviors highlighted the need for evaluation and intervention in bronchiectasis. These findings will provide rationales for refining future health care through comprehensive (particularly psychological) interventions worldwide. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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