Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis.
Background: As Next Generation Sequencing technologies are increasingly implemented in biomedical research and (translational) care, the number of study participants and patients who ask for release of their genomic raw data is set to increase. This raises the question whether research participants...
| Published in: | BMC Medical Ethics Vol. 21; no. 1; pp. 1 - 13 |
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| Main Authors: | , , |
| Format: | research Journal Article |
| Published: |
BioMed Central
1/16/2020
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| Online Access: | View this record in EBSCOhost |