Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis.
Background: As Next Generation Sequencing technologies are increasingly implemented in biomedical research and (translational) care, the number of study participants and patients who ask for release of their genomic raw data is set to increase. This raises the question whether research participants...
| Publicado en: | BMC Medical Ethics Vol. 21; no. 1; pp. 1 - 13 |
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| Autores principales: | , , |
| Formato: | research Journal Article |
| Publicado: |
BioMed Central
1/16/2020
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| Acceso en línea: | Ver este registro en EBSCOhost |