Experiences of Parents of Children with ASD: Implications for Inclusive Parental Engagement.

Despite the documented benefits of engaging parents in their children's education, some parents become marginalized due to the ways parental engagement is conceptualized and implemented in schools. The purpose of this study is to examine the experience of parents who have children with autism spectr...

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Publicado en:Journal of Child & Family Studies Vol. 32; no. 3; pp. 951 - 965
Autores principales: Urkmez, Bilal, Gedik, Serafettin, Guzen, Mehmet
Formato: Artículo
Publicado: Springer Nature Mar2023
Materias:
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Mar2023
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        10.1007/s10826-022-02481-0
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        atl: Experiences of Parents of Children with ASD: Implications for Inclusive Parental Engagement.
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        au:
          Urkmez, Bilal
          Gedik, Serafettin
          Guzen, Mehmet
        affil:
          Department of Counseling and Higher Education, Ohio University, Athens, OH, USA
          Department of Educational Sciences, Amasya University, Amasya, Turkey
      su:
        Parent attitudes
        Special education
        Leadership
        Children with disabilities
        Social justice
        Parenting
        Phenomenology
        Autism
        Thematic analysis
      sug:
        subj:
          Parent attitudes
          Special education
          Leadership
          Children with disabilities
          Social justice
          Parenting
          Phenomenology
          Autism
          Thematic analysis
      keyword:
        Autism spectrum disorder
        Inclusive education
        Interpretive phenomenology
        Parental engagement
        Social justice leadership
        Autism spectrum disorder
        Inclusive education
        Interpretive phenomenology
        Parental engagement
        Social justice leadership
      ab: Despite the documented benefits of engaging parents in their children's education, some parents become marginalized due to the ways parental engagement is conceptualized and implemented in schools. The purpose of this study is to examine the experience of parents who have children with autism spectrum disorder (ASD) as they try to engage in their children's education. As a result of this hermeneutic phenomenological work, we first explored two major themes: parental engagement as demanding work and searching for partnership while coping with marginalization. Then a third theme were explored focusing on the overarching meaning of their experiences. Our findings show that parental engagement has been a highly demanding and overwhelming responsibility for these parents, and they experienced a sense of isolation and marginalization in school environments. At the intersection of research focusing on inclusive education, home-school partnership, and school leadership, we discuss implications for educators, policy makers, and teacher preparation programs. Highlights: Even dedicated parents of children with autism spectrum disorder (ASD) experience marginalization in schools. Traditional, school–centric views of home–school partnership can further contribute to marginalization of parents of children with ASD. School leadership plays a central role in defining what parents of children with ASD experience as a partnership. There is a need for further research to go beyond rhetoric and explore the experiences of children with ASD and their families. Teacher preparation programs should include courses that engage in the critical research focusing on the experiences of children with ASD and their families.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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