An online survey to understand the needs of caregivers of family members with 22q11 deletion syndrome.

Background: Most individuals with 22q11.2 deletion syndrome (22q11DS) have multi‐system and lifelong needs requiring substantial support. Their primary caregivers are usually family members who dedicate lifelong time and effort to their role. The pressures of their roles can negatively impact caregi...

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Bibliographic Details

Published in:	Journal of Intellectual Disability Research Vol. 67; no. 9; pp. 860 - 869
Main Authors:	Cosman, T., Finless, A., Rideout, A. L., Lingley‐Pottie, P., Palmer, L. D., Shugar, A., McDonald‐McGinn, D. M., Swillen, A., McGrath, P. J., Bassett, A. S., Cytrynbaum, C., Orr, M., Meier, S.
Format:	questionnaire/scale research tables/charts Journal Article
Published:	Wiley-Blackwell Sep2023
Online Access:	View this record in EBSCOhost