An online survey to understand the needs of caregivers of family members with 22q11 deletion syndrome.

Background: Most individuals with 22q11.2 deletion syndrome (22q11DS) have multi‐system and lifelong needs requiring substantial support. Their primary caregivers are usually family members who dedicate lifelong time and effort to their role. The pressures of their roles can negatively impact caregi...

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Publicado en:	Journal of Intellectual Disability Research Vol. 67; no. 9; pp. 860 - 869
Autores principales:	Cosman, T., Finless, A., Rideout, A. L., Lingley‐Pottie, P., Palmer, L. D., Shugar, A., McDonald‐McGinn, D. M., Swillen, A., McGrath, P. J., Bassett, A. S., Cytrynbaum, C., Orr, M., Meier, S.
Formato:	questionnaire/scale research tables/charts Journal Article
Publicado:	Wiley-Blackwell Sep2023
Acceso en línea:	Ver este registro en EBSCOhost