Unraveling non‐participation in genomic research: A complex interplay of barriers, facilitators, and sociocultural factors.

Although genomic research offering next‐generation sequencing (NGS) has increased the diagnoses of rare/ultra‐rare disorders, populations experiencing health disparities infrequently participate in these studies. The factors underlying non‐participation would most reliably be ascertained from indivi...

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Bibliographic Details

Published in:	Journal of Genetic Counseling Vol. 32; no. 5; pp. 993 - 1009
Main Authors:	McConkie‐Rosell, Allyn, Spillmann, Rebecca C., Schoch, Kelly, Sullivan, Jennifer A., Walley, Nicole, McDonald, Marie, Hooper, Stephen R., Shashi, Vandana, Adam, Margaret, Adams, David R., Alvey, Justin, Amendola, Laura, Andrews, Ashley, Ashley, Euan A., Azamian, Mahshid S., Bacino, Carlos A., Bademci, Guney, Balasubramanyam, Ashok, Baldridge, Dustin, Bale, Jim
Format:	research tables/charts Journal Article
Published:	Wiley-Blackwell Oct2023
Online Access:	View this record in EBSCOhost