Re-Consenting Pediatric Research Participants as Legal Adulthood Approaches: Lessons from the SPARK Autism Study.

To explore issues surrounding re-consenting youth in longitudinal studies as they reach legal adulthood interviews were conducted with 46 parents plus 13 autistic teens enrolled in the Simons Foundation Powering Autism Research for Knowledge (SPARK) study. Qualitative analysis focused on family sens...

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Publicado en:	Journal of Autism & Developmental Disorders Vol. 54; no. 1; pp. 18 - 33
Autores principales:	Anderson, Connie, Iampieri, Alan, Franklin, Leah, Daniels, Amy, Diehl, Katharine, Law, J. Kiely
Formato:	research tables/charts Journal Article
Publicado:	Springer Nature Jan2024
Acceso en línea:	Ver este registro en EBSCOhost