Exploring the role of digital tools in rare disease management: An interview‐based study.

While digital tools, such as the Internet, smartphones, and social media, are an important part of modern society, little is known about the specific role they play in the healthcare management of individuals and caregivers affected by rare disease. Collectively, rare diseases directly affect up to...

Full description

Bibliographic Details

Published in:	Journal of Genetic Counseling Vol. 34; no. 1; pp. 1 - 13
Main Authors:	Chang, Andrea, Huang, Sarah D., Benjamin, Daniel J., Schmidt, Johanna L., Palmer, Christina G. S., Garrison, Nanibaa' A.
Format:	research tables/charts Journal Article
Published:	Wiley-Blackwell Feb2025
Online Access:	View this record in EBSCOhost