Co‐Producing and Evaluating a Culturally Inclusive Dementia Education Initiative: A Multimethod Study Protocol.
Introduction: Limited dementia awareness among culturally and linguistically diverse communities can exacerbate stigma and hinder support for carers and people at risk of or living with dementia. Co‐producing a culturally inclusive dementia education intervention with representative stakeholders can...
| Publicado en: | Health Expectations Vol. 28; no. 3; pp. 1 - 11 |
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| Autores principales: | , , , , , , , |
| Formato: | protocol Journal Article |
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Wiley-Blackwell
Jun2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=186251899&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 186251899 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Jun2025 vid: 28 iid: 3 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 186251899 186251899 186251899 10.1111/hex.70307 186251899 ppf: 1 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Co‐Producing and Evaluating a Culturally Inclusive Dementia Education Initiative: A Multimethod Study Protocol. aug: au: Caballero, Gabriela Dadich, Ann DiGiacomo, Michelle Morrison, Nicky Okafor, Charles Siette, Joyce Steiner‐Lim, Genevieve Z. Karamacoska, Diana affil: NICM Health Research Institute, Western Sydney University, Sydney, Australia sug: subj: Dementia Education Health Education Diversity, Equity, Inclusion Program Evaluation Health Knowledge Evaluation Attitude to Illness Evaluation Support, Psychosocial Help Seeking Behavior Patient Centered Care Multimethod Studies Cultural Diversity Health Literacy ab: Introduction: Limited dementia awareness among culturally and linguistically diverse communities can exacerbate stigma and hinder support for carers and people at risk of or living with dementia. Co‐producing a culturally inclusive dementia education intervention with representative stakeholders can address these knowledge and service gaps. This paper details the protocol for designing and evaluating a co‐produced multilingual dementia education intervention named Dementia Friends Unite. This project aims to improve dementia knowledge, attitudes and supportive practices in a multicultural context. Method: This project will be conducted in South Western Sydney, Australia, where Arabic, Cantonese, English, Greek, Mandarin and Vietnamese are the most common languages spoken. A multi‐stakeholder collaboration involving representatives from each of these communities was formed to co‐produce the multilingual dementia education intervention. Two studies are planned to explore the co‐production process and evaluate the intervention's impact, guided by implementation science frameworks. Study 1 will examine stakeholder and researcher experiences in co‐production through minuted meetings and responses to the patient and public engagement evaluation tool. Data will be descriptively analysed to identify the barriers and facilitators to co‐production. Study 2 involves evaluating the initiative's impact according to the RE‐AIM framework. Outcome measures include intervention reach and effectiveness in changing participants' knowledge, attitudes and supportive practices through questionnaires (pre‐, post‐ and follow‐up) and interviews; adoption and implementation characteristics through focus groups with stakeholders and facilitators; and maintenance through a cost–benefit analysis. Conclusion: This project will employ a comprehensive approach to address unmet needs and research gaps in co‐produced dementia education and its implementation in multicultural contexts. It can serve as a blueprint for others seeking to engage culturally diverse populations in community‐based health education and research. Patient or Public Contribution: A multi‐stakeholder collaboration involving representatives from local government and care services, as well as people with living and caring experiences of dementia, from each of the targeted communities, was formed to co‐produce this initiative. Their involvement spans study design, conduct, interpretation of findings and dissemination. pubtype: Academic Journal doctype: protocol Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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