Implementing a Nordic-Baltic Federated Health Data Network: A Case Report...20th World Congress on Medical and Health Informatics (MEDINFO), August 9-13, 2025, Taipei, Taiwan

Centralized collection and processing of healthcare data across national borders pose significant challenges, including privacy concerns, data heterogeneity, and legal barriers. To study some of these challenges, we formed an interdisciplinary consortium to develop a federated health data network, c...

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Detalles Bibliográficos
Publicado en:Studies in Health Technology & Informatics Vol. 329; pp. 1241 - 1246
Autores principales: CHOMUTARE, Taridzo, BARBIC, Aleksandar, PELTONEN, Laura-Maria, ELUNURM, Silja, LUNDBERG, Peter, JÖNSSON, Arne, ENELING, Emma, GERSTENBERGER, Ciprian-Virgil, SIGGAARD, Troels, KOLDE, Raivo, JERDHAF, Oskar, HANSSON, Martin, MAKHLYSHEVA, Alexandra, MUZNY, Miroslav, YLIPÄÄ, Erik, BRUNAK, Søren, DALIANIS, Hercules
Formato: proceedings research tables/charts Journal Article
Publicado: Sage Publications Inc. 2025
Acceso en línea:Ver este registro en EBSCOhost
Descripción
Sumario:Centralized collection and processing of healthcare data across national borders pose significant challenges, including privacy concerns, data heterogeneity, and legal barriers. To study some of these challenges, we formed an interdisciplinary consortium to develop a federated health data network, comprised of six institutions across five countries, to facilitate Nordic-Baltic cooperation on secondary use of health data. The objective of this report is to offer early insights into our experiences developing this network. We employed a mixed-methods approach, combining both experimental design and implementation science to assess the factors influencing the implementation of our network. Technically, our experiments indicate that the network functions without significant performance degradation compared to centralized simulation. While use of interdisciplinary approaches holds a potential to solve challenges associated with establishing such collaborative networks, our findings turn the spotlight on the uncertain regulatory landscape playing catch up and the significant operational costs.