Making Research Accessible to the Developmental Language Disorder Community: A Mixed Methods Study Using the Nominal Group Technique.

Background: Accessing research can be difficult for individuals with developmental language disorder (DLD) and their supporting networks (e.g., family, speech–language therapists, and teachers). This challenge may be attributable to the DLD community's difficulty with searching and paying for scient...

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Publicado en:International Journal of Language & Communication Disorders (John Wiley & Sons, Inc.) Vol. 60; no. 5; pp. 1 - 14
Autores principales: Jackson, Emily, Wijaya, Janice, Bhatoolaul, Sanjana, Tan, Qi Xun, Leitão, Suze
Formato: Artículo
Publicado: John Wiley & Sons, Inc. Sep/Oct2025
Materias:
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Sep/Oct2025
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      pub: John Wiley & Sons, Inc.
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        atl: Making Research Accessible to the Developmental Language Disorder Community: A Mixed Methods Study Using the Nominal Group Technique.
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          Jackson, Emily
          Wijaya, Janice
          Bhatoolaul, Sanjana
          Tan, Qi Xun
          Leitão, Suze
        affil: School of Allied Health, Curtin University, Perth, Australia
      su:
        Social media
        Human research subjects
        Statistical sampling
        Judgment sampling
        Descriptive statistics
        Developmental disabilities
        Language disorders
        Medical research
        Research methodology
        Streaming media
        Data analysis software
        Patients' attitudes
        Access to information
        Webinars
      sug:
        subj:
          Social media
          Human research subjects
          Statistical sampling
          Judgment sampling
          Descriptive statistics
          Developmental disabilities
          Language disorders
          Medical research
          Research methodology
          Streaming media
          Data analysis software
          Patients' attitudes
          Access to information
          Webinars
      keyword:
        accessibility
        developmental language disorder (DLD)
        dissemination
        language disorders
        plain language summary
        research engagement
      ab: Background: Accessing research can be difficult for individuals with developmental language disorder (DLD) and their supporting networks (e.g., family, speech–language therapists, and teachers). This challenge may be attributable to the DLD community's difficulty with searching and paying for scientific research and the complexity of language used in dissemination methods such as journal articles. It is important that members of the DLD community can access and understand research to facilitate the community's involvement in research and as a key part of building knowledge of DLD. To date, no studies have explored the DLD community's perspectives on their preferences for accessing and understanding research. Aims: This mixed methods study aimed to explore the DLD community's perspectives on how researchers can make their findings more accessible. Methods and Procedures: An international group of parents of children with DLD (including one parent who also had DLD) and a speech–language therapist (n = 9) participated in a nominal group technique process to share their perspectives. The group identified a range of methods that researchers could use to make DLD research more accessible to the community, which they discussed in depth and then ranked in order of preference. Consensus ranking analysis was used to identify preferred methods for research dissemination. The ranking exercise was supplemented by in‐depth discussions about research accessibility, which were analysed using qualitative content analysis. Outcomes and Results: Participants identified plain language summaries, flyers, infographics, and short videos as their preferred formats for making scientific research accessible to the DLD community. Qualitative analyses highlighted four main categories of recommendations for researchers, including the use of text‐based, visual (static), and multimedia (dynamic) approaches, as well as recommendations for making language adjustments and involving the DLD community in disseminating research findings. Conclusions and Implications: This study will help researchers better understand the DLD community's needs, enabling more effective dissemination of their findings to those most impacted by the research. In return, research findings are more likely to be translated into a form that the community can understand. WHAT THIS PAPER ADDS: What is already known on this subjectAccessing research can be difficult for individuals with DLD and their supporting networks (e.g., family, speech–language therapists [SLTs], and teachers). No previous studies have explored the DLD community's perspective of their ability to access and understand the findings of research on the topic of DLD. What this study adds to the existing knowledgeThis is the first known study to explore the perspectives of the DLD community on how researchers should disseminate findings in an accessible manner. The participants in our study ranked plain language summaries, flyers/pamphlets, infographics, and short videos as their preferred formats of disseminating scientific research. What are the clinical implications for this study?We provide clear recommendations to researchers from the perspective of individuals from the DLD community. These include a range of formats and methods for increasing accessibility to, and engagement with, research findings. Improving accessibility may lead to empowerment of the DLD community and may aid their ongoing engagement in research processes.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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