Coping Strategies and Sense of Care Among Parents of Children Affected by Sturge–Weber Syndrome: A Cross-Sectional Study.
Background/Objectives: The diagnosis of a rare disease such as Sturge–Weber syndrome (SWS) has a profound emotional impact on parents, who must adapt to an unexpected and complex caregiving role. This study aimed to analyse the sense of caregiving among parents of children with SWS and to identify t...
| Publicado en: | Nursing Reports Vol. 16; no. 2; pp. 66 - 82 |
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| Autores principales: | , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
MDPI
Feb2026
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| Acceso en línea: | Ver este registro en EBSCOhost |