Coping Strategies and Sense of Care Among Parents of Children Affected by Sturge–Weber Syndrome: A Cross-Sectional Study.

Background/Objectives: The diagnosis of a rare disease such as Sturge–Weber syndrome (SWS) has a profound emotional impact on parents, who must adapt to an unexpected and complex caregiving role. This study aimed to analyse the sense of caregiving among parents of children with SWS and to identify t...

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Bibliographic Details

Published in:	Nursing Reports Vol. 16; no. 2; pp. 66 - 82
Main Authors:	de Benito Alberto, Hernández, Toro María Isabel, Buceta, Guijo María, Sanz, Gallardo María Pilar, Serrano
Format:	research tables/charts Journal Article
Published:	MDPI Feb2026
Online Access:	View this record in EBSCOhost