Family Experiences in a Pediatric Clinical Brain–Computer Interface Program: A Qualitative Study.
Importance: Brain–computer interfaces (BCIs) are access technologies that can improve the occupational participation of children with disabilities. The research on the experiences of pediatric BCI users and their families is currently limited. Objective: To explore experiences of pediatric BCI use a...
| Publicado en: | American Journal of Occupational Therapy Vol. 80; no. 3; pp. 1 - 11 |
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| Autores principales: | , , , , , , , , , , |
| Formato: | algorithm research tables/charts Journal Article |
| Publicado: |
American Occupational Therapy Association
May/Jun2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=193840521&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 193840521 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 02729490 44I jtl: American Journal of Occupational Therapy issn: 02729490 maglogo: N pubinfo: dt: May/Jun2026 vid: 80 iid: 3 pid: 6680 pub: American Occupational Therapy Association place: North Bethesda, Maryland artinfo: ui: 193840521 193840521 193840521 10.5014/ajot.2026.051474 193840521 ppf: 1 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Family Experiences in a Pediatric Clinical Brain–Computer Interface Program: A Qualitative Study. aug: au: Van Damme, Susannah Mumford, Leslie Thompson, Amy Murphy, Clare Ali, Tetyana Hegazi, Amira Wang, RuoDing Chang, Kristen Raza, Insia Ali Chau, Tom Kingsnorth, Shauna affil: Team Lead and Occupational Therapist, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada sug: subj: Parents of Children with Disabilities Psychosocial Factors Caregivers Psychosocial Factors Parental Attitudes Evaluation Caregiver Attitudes Evaluation Brain-Computer Interfaces Utilization Brain-Computer Interfaces Utilization Rehabilitation, Pediatric Pediatric Occupational Therapy Human Qualitative Studies Descriptive Research Male Female Child Adolescence Purposive Sample Thematic Analysis Mothers Fathers Recreation Rehabilitation Centers Funding Source Semi-Structured Interview Hope Individualized Medicine Descriptive Statistics Empowerment Play and Playthings Occupation (Human) Equipment Design Children with Disabilities Psychosocial Factors Health Services Accessibility Cerebral Palsy Rehabilitation Hereditary Diseases Rehabilitation Mental Disorders Diagnosed in Childhood Rehabilitation Electroencephalography Confidence Happiness Calibration Sensation Dystonia Wheelchairs Motivation Emotions Creativeness Caregiver Burden Child: 6-12 years Adolescent: 13-18 years Male Female ab: Importance: Brain–computer interfaces (BCIs) are access technologies that can improve the occupational participation of children with disabilities. The research on the experiences of pediatric BCI users and their families is currently limited. Objective: To explore experiences of pediatric BCI use and future expectations through caregiver perspectives. Design: A qualitative, descriptive study using purposeful sampling and inductive thematic analysis. Investigator triangulation and reflexivity enhanced credibility. Setting: Zoom for Healthcare virtual platform. Participants: Fifteen parents (12 mothers and 3 fathers) of children and youth with disabilities (ages 6–18 yr; 9 females and 6 males) who participated in a recreational BCI program at a pediatric rehabilitation hospital, with the option of additional at-home BCI use, were selected via purposive sampling. Outcomes and Measures: In-depth, semistructured interviews were used to collect data. Results: Three major themes emerged from the central topic of experiencing play using BCIs: (1) transformative experiences, (2) personalization for success, and (3) future hopes. Conclusions and Relevance: By documenting family experiences with and expectations of BCIs, these findings can guide the development of BCI use in clinical and recreational programs. Occupational therapy practitioners can use the transformative potential of BCI technology to create new pathways for participation and empowerment in the lives of children and youth with disabilities. Plain-Language Summary: Children with complex disabilities often cannot take part in play and recreation. Many activities are not accessible to them. Brain–computer interface (BCI) technologies can help kids play without needing to move or speak. We asked families using BCIs about their experiences. They shared that use of a BCI empowered their child and allowed others to consider them in a new light. Some families enjoyed the programming, and others found the activities too simple over time. Many families shared that BCI headsets were uncomfortable. A better design for kids with disabilities is important. Families hope that BCIs will help kids control their environment in the future. Occupational therapists should understand how kids and families feel about using BCIs. This study helps occupational therapists learn about the benefits of BCIs in their practice and the challenges of using them. This study helps occupational therapists learn about the benefits of brain–computer interfaces in their practice and the challenges of using them to improve the occupational participation of children with disabilities. pubtype: Academic Journal doctype: algorithm research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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