Aligning clinical care with consumer priorities: an adult cystic fibrosis centre experience of co‐designing a model of care.
Cystic fibrosis (CF) is a multi‐system genetic condition, and CF modulator therapies have transformed health outcomes promising improved longevity. Our aim was to co‐design and implement a nested endocrine and metabolic model of care called CF Endocrine for adults with CF that aligned with consumer...
| Publicado en: | Internal Medicine Journal pp. 1 - 7 |
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| Autores principales: | , , , |
| Formato: | Journal Article |
| Publicado: |
Wiley-Blackwell
Jul2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=195334611&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 195334611 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 14440903 HYC jtl: Internal Medicine Journal issn: 14440903 maglogo: Y pubinfo: dt: Jul2026 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 195334611 10.1111/imj.70534 195334611 ppf: 1 ppct: 6 formats: tig: atl: Aligning clinical care with consumer priorities: an adult cystic fibrosis centre experience of co‐designing a model of care. aug: au: Kumar, Shanal Moore, Vanessa Smith, Daniel Matson, Angela affil: The Adult Cystic Fibrosis Centre (ACFC), The Prince Charles Hospital sug: ab: Cystic fibrosis (CF) is a multi‐system genetic condition, and CF modulator therapies have transformed health outcomes promising improved longevity. Our aim was to co‐design and implement a nested endocrine and metabolic model of care called CF Endocrine for adults with CF that aligned with consumer and healthcare provider priorities and addressed emerging service gaps in the post‐modulator era. Using mixed‐methods and implementation science methodologies, we designed and conducted surveys, audits and workshops to define service priorities and referral pathways and workflows. In total, 17% of adults attending our CF centre participated in the survey and reported lifestyle optimisation, weight management and diabetes prevention as leading consumer concerns. Four service arms were developed: (i) diabetes support, (ii) bone health, (iii) metabolic health and (iv) reproductive/sexual health. Providers showed strong alignment with consumer priorities and endorsed integration and feasibility of the new nested CF Endocrine service. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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