'I told them they had to get tested, and they did': social influence among siblings with Li-Fraumeni syndrome.

Objectives: Health-related social influence refers to individual efforts to change another person's health beliefs and/or behavior. We sought to understand perspectives on social influence among adult siblings in families with an inherited cancer syndrome, Li-Fraumeni Syndrome (LFS). Design: An inte...

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Publicado en:Psychology & Health Vol. 41; no. 10; pp. 1634 - 1656
Autores principales: Huelsnitz, Chloe O., Werner-Lin, Allison, Thompson, Ashley S., Rising, Camella J., Forbes Shepherd, Rowan, Young, Jennifer L., Greene, Mark H., Khincha, Payal P.
Formato: research tables/charts Journal Article
Publicado: Taylor & Francis Ltd Oct2026
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Oct2026
      vid: 41
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      pub: Taylor & Francis Ltd
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        atl: 'I told them they had to get tested, and they did': social influence among siblings with Li-Fraumeni syndrome.
      aug:
        au:
          Huelsnitz, Chloe O.
          Werner-Lin, Allison
          Thompson, Ashley S.
          Rising, Camella J.
          Forbes Shepherd, Rowan
          Young, Jennifer L.
          Greene, Mark H.
          Khincha, Payal P.
        affil: Division of Cancer Control and Population Sciences, Behavioral Research Program, National Cancer Institute, Rockville, MD, USA
      sug:
        subj:
          Siblings Psychosocial Factors
          Family Attitudes
          Sibling Relations
          Li-Fraumeni Syndrome
          Health Beliefs
          Health Behavior
          Behavioral Changes
          Human
          Multidisciplinary Care Team
          Semi-Structured Interview
          Adult
          Middle Age
          Aged
          Family Relations
          Communication
          Cancer Screening
          Oncologic Care
          Thematic Analysis
          Genetic Screening
          Neoplasms Prevention and Control
          Neoplasms Therapy
          Autonomy
          Risk Assessment
          Hereditary Diseases
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Aged: 65+ years
      ab: Objectives: Health-related social influence refers to individual efforts to change another person's health beliefs and/or behavior. We sought to understand perspectives on social influence among adult siblings in families with an inherited cancer syndrome, Li-Fraumeni Syndrome (LFS). Design: An interprofessional team conducted 16 semi-structured interviews with sibling groups (n = 29, aged 18–66, 2–3 siblings per group) enrolled in the NCI's LFS Study. Main Outcome Measures: A semi-structured interview guide included questions targeting family closeness, information sharing, and perspectives on screening and cancer care. The research team collaboratively conducted thematic analysis on verbatim transcripts. Results: Participants reported attempts to influence their siblings' thoughts or behavior regarding LFS-related genetic testing and cancer screening, prevention, and treatment. Some participants expressed respect for sibling autonomy regarding risk management decisions. Others reported explicit attempts to change their siblings' perspective or behavior due to concern for their siblings' health. Conclusion: Findings suggest participants believed their influence meaningfully affected siblings' LFS risk management, indicating such influence comprises a social intervention pathway with potential to increase cascade testing and to support risk management. However, for some siblings, such efforts incurred risk of relational conflict. Future research might aim to help adult siblings balance social influence strategies with relational maintenance behaviors.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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