Experiences and preferences for learning about neonatal research: insights from parent interviews.
Introduction: Parents struggle with being asked to participate in neonatal research. Past work has largely failed to include views of minoritized parents, low-socioeconomic status parents, and those who declined research. We aimed to describe parents' preferences related to learning about eligibilit...
| Publicado en: | Journal of Perinatology Vol. 44; no. 3; pp. 404 - 415 |
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| Autores principales: | , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Springer Nature
Mar2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=175932288&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 175932288 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 07438346 DZF jtl: Journal of Perinatology issn: 07438346 maglogo: Y pubinfo: dt: Mar2024 vid: 44 iid: 3 pid: 2579 pub: Springer Nature place: Dordrecht, <Blank> artinfo: ui: 175932288 175932288 175932288 10.1038/s41372-023-01790-6 175932288 ppf: 404 ppct: 11 formats: tig: atl: Experiences and preferences for learning about neonatal research: insights from parent interviews. aug: au: Weiss, Elliott Mark Porter, Kathryn M. Oslin, Ellie Puia-Dumitrescu, Mihai Donohue, Pamela K. Merhar, Stephanie L. Stephens, Emily Mercer, Amanda Wilfond, Benjamin S. affil: Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, Seattle, WA, USA sug: subj: Parental Attitudes Evaluation Parents Psychosocial Factors Research, Medical Social Class Research Subjects Consumer Participation Human Male Female Adult Qualitative Studies Interviews Thematic Analysis Content Analysis Interpersonal Relations Researcher-Subject Relations Evaluation Research Subject Recruitment Funding Source Emotions Adult: 19-44 years Male Female ab: Introduction: Parents struggle with being asked to participate in neonatal research. Past work has largely failed to include views of minoritized parents, low-socioeconomic status parents, and those who declined research. We aimed to describe parents' preferences related to learning about eligibility for neonatal research. Methods: Qualitative interviews of parents who were asked to enroll their infant in neonatal research. Themes related to parental experiences and preferences for learning about neonatal research were identified using content analysis. Results: Many parents desired greater involvement of their clinical team. Emotions at the time of recruitment were critically important to parents' experience, where were deeply impacted by interpersonal relationships with research staff. Discussion: Increased involvement of the clinical team and greater sensitivity to the stressors around parent and infant conditions at the time of recruitment for neonatal research should be considered by those attempting to improve recruitment for neonatal research. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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