Community-Led Adaptations of a Promotora-Delivered Intervention for Latino Families of Youth with Developmental Disabilities.

There is a need to address the disparities in service use for Latino youth with developmental disabilities and their families. The PUENTE program is a multi-agency service model that utilized an 11-session Promotora-delivered curriculum (Parents Taking Action, Magaña et al., 2017) to promote service...

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Publicado en:Journal of Child & Family Studies Vol. 33; no. 4; pp. 1238 - 1251
Autores principales: Rangel, Elizabeth, Rieth, Sarah, Mejia, Yesenia, Cervantes, Laura, Bello Vazquez, Brenda, Brookman-Frazee, Lauren
Formato: Artículo
Publicado: Springer Nature Apr2024
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Acceso en línea:Ver este registro en EBSCOhost
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      dt: Apr2024
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      pub: Springer Nature
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        atl: Community-Led Adaptations of a Promotora-Delivered Intervention for Latino Families of Youth with Developmental Disabilities.
      aug:
        au:
          Rangel, Elizabeth
          Rieth, Sarah
          Mejia, Yesenia
          Cervantes, Laura
          Bello Vazquez, Brenda
          Brookman-Frazee, Lauren
        affil:
          San Diego State University/University of California, San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA, USA
          Child and Adolescent Services Research Center, San Diego, CA, USA
          https://ror.org/0264fdx42 San Diego State University, Department of Child and Family Development, San Diego, CA, USA
          University of California, San Diego, Department of Psychiatry, San Diego, CA, USA
          https://ror.org/0264fdx42 San Diego State University, San Diego, CA, USA
          San Diego Regional Center, San Diego, CA, USA
      su:
        Families & psychology
        Hispanic Americans
        Evaluation of human services programs
        Interviewing
        Autism
        Psychological adaptation
        Communities
        Developmental disabilities
        Intellectual disabilities
        Health equity
        Medical care use
        Descriptive statistics
        Research methodology
        Conceptual structures
      sug:
        subj:
          Families & psychology
          Hispanic Americans
          Evaluation of human services programs
          Interviewing
          Autism
          Psychological adaptation
          Communities
          Developmental disabilities
          Intellectual disabilities
          Health equity
          Medical care use
          Descriptive statistics
          Research methodology
          Conceptual structures
      keyword:
        Community implementation
        Health services use disparities
        Latino families
        Community implementation
        Health services use disparities
        Latino families
      ab: There is a need to address the disparities in service use for Latino youth with developmental disabilities and their families. The PUENTE program is a multi-agency service model that utilized an 11-session Promotora-delivered curriculum (Parents Taking Action, Magaña et al., 2017) to promote service utilization among underserved Latino families of youth with developmental disabilities. This study applied two implementation adaptation frameworks (FRAME; Stirman et al., 2019; FRAME-IS; Miller et al., 2021) to elicit feedback from community partners and characterize adaptations for scale up and sustainment. Mixed qualitative and quantitative methods were used to characterize adaptations used and recommended for future use. Promotoras reported adaptations made during the delivery of the intervention via end-of-service surveys for 20 families. Respondents, including Promotoras (n = 5), caregivers (n = 11), and staff (n = 2), were interviewed using semi-structured interviews. Rapid analysis of qualitative data was conducted and integrated with quantitative data to generate and categorize adaptations. Using FRAME and FRAME-IS, adaptations were noted at multiple levels of the program (e.g., content, context, and training). The most common Promotora-reported adaptations were Covering One Topic Across Multiple Sessions (M = 1.65, SD = 1.35) and Adding Content (M = 1.00, SD = 0.86). Additional adaptation themes from the qualitative data, such as the context-level adaptation recommendation of Individualizing for Engagement, converged with the quantitative data. This study builds on a multi-phase, community partnered approach to reducing disparities in access to services for Latino youth with developmental disabilities. These adaptations will be incorporated as part of a large-scale implementation effort to ensure that the program successfully addresses community needs. Highlights: To meet the needs of Latino youth with developmental disabilities and their families, research programs need to center community input. This project utilized a mixed-methods approach to identify community adaptation recommendations to an evidence-based parent intervention. Community-partnered research is required to deliver culturally appropriate care. Community-led adaptations can address the disparities in service use among Latino families of children with developmental disabilities.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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